Liz's accessible Village

Living Everyday with Friedreich's Ataxia

  • What is FA?
  • Where I got my service dog, Winston
  • Chair Yoga
  • ADA Regulations
  • Masshealth PCA Consumer Handbook
  • MA Statewide Independent Living Council
  • Massachusetts Rehabilitation Commission
  • Mass Health PCA Directory
  • A helpful PCA search site
  • July 19, 2019

    Not in Spite of Me, Because of Me

    I would like to say that having a disability and being a mother, are two unrelated characteristics about me. Unfortunately, just like all other facets of my life, my role as a mother is directly affected by FA (my disease). Some aspects of my parenting style are the same as they would be, but even…

  • July 10, 2019

    The Perfect Amount of Imperfection

    I don’t know if it is just me or do most people have moments of clarity. Mine, most often occur when: I am well rested, highly caffeinated, and have recently peed. So, quite clearly these moments are few and far between. Seriously though, when I have these moments, the thought or answer seems so obvious…

  • July 5, 2019

    The Lunacy of Limbo

    My younger son is three, and my daily, fairly predictable, life has become insane. I end almost every night, recently, in tears. Either of relief that one more day is done, or of pure exhaustion. Most of the time it is a little bit of both. There is a certain amount of solace that I…

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