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“It takes a Village”
It is really frustrating being stuck in a body that cannot keep up with your mind. When I think of all the hobbies, jobs, or activities I would love to do vs. what the list actually is, I am really limited. In actuality, the “things” I am able to do on my own, are very…
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My sons
I have two biological sons, even though I seem to have a fondness for“lost children”. Meaning I want to “adopt/save” everyone, that I deem needing in some way; whether they’re dealing or have dealt with various types of abuse or neglect. Not because I think I am better or smarter. I do seem to have…
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Me at a glance
FA is like being lost at sea alone on a sailboat, in the middle of a hurricane. That statement may seem overly dramatic to some people, but to those of us living with Friedreich’s Ataxia, it feels like an understatement. Seventeen years ago I was anxious to leave for my freshmen year of college and…
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Liz's accessible Village 