Liz's accessible Village

Living Everyday with Friedreich's Ataxia

  • What is FA?
  • Where I got my service dog, Winston
  • Chair Yoga
  • ADA Regulations
  • Masshealth PCA Consumer Handbook
  • MA Statewide Independent Living Council
  • Massachusetts Rehabilitation Commission
  • Mass Health PCA Directory
  • A helpful PCA search site
  • February 18, 2020

    Regrets

    I graduated from high school in June of 2001. In August 2001 I was diagnosed with Friedreich’s Ataxia, and almost exactly two weeks later I moved into my freshman dorm room on the ninth floor of a residence hall at Temple University in Philidelphia, PA as a social work major. That school year (fall 2001…

  • February 8, 2020

    My Hell, Friedreich’s Ataxia

    I am what most people (including me) would refer to as, a control freak, a micromanager, or neurotic. It is kind of a twist of fate that 19 yrs ago I was told I had a diagnosis of Fredrich’s Ataxia (FA), a neuromuscular progressive degenerative genetic disorder. Basically, I was told my body would deteriorate…

  • January 22, 2020

    2 Week Update

    Week one of every new initiative is always the hardest. I might be finding the hardest of anyone. I purposely have to wheel by laundry, cups, clutter, and remind myself I did not make this mess! If I know it is the result of my preschooler reminding is in order. Please pick up your toys…

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