The First Week of School

    I just want to check in to see how the first week(s) of school is going? School started for my sons on the 15th. It is unique, to say the least, as I am sure it is for everyone else. My good thoughts are with all families - no matter what their plan … Continue reading The First Week of School

“Preparing for the Worst”

“Preparing for the worst, and hope for the best” is a motto I am choosing to live my new life by.  Instead of hope, I choose to put a little more determination in it saying "I will do my best."  I will face every situation, old or new as if it is the first time … Continue reading “Preparing for the Worst”

Starting Over, Again

The world is currently going through a time period that, a year ago, most of us would never have thought possible.  During such a time of uncertainties, I and many people around me are taking a step back and looking at their lives from a different perspective.  So many parts of our current lives are … Continue reading Starting Over, Again

My Intrepretation

I am and have been impacted by so many smart and talented people throughout my life. Within the past few years, I have been trying to focus on me, and what makes me tick. Not as a mother, a wheelchair-user, or someone's wife, but as a person who happens to describe herself with those adjectives … Continue reading My Intrepretation

FARA interview

Riding the Wave

I am no stranger to the emotional waves that seem to be a constant part of life (at least for me). Even though there is an occasional strong wave that often leaves some disaster in its wake, life's ongoing current has become normal to me. Seasonal, situational, and yes, I am sure some chemical factors … Continue reading Riding the Wave

10 Positives in the First 2 Weeks!

Last Wednesday marked two weeks that I have not left my home, with the exception of my deck and the front yard.  Until today I have felt positive and upbeat. Spending a lot of time in my home is something I am unfortunately accustomed to.  I am talking about a 5 to 6 day time … Continue reading 10 Positives in the First 2 Weeks!

The Ripple Effect

It is extremely difficult to sort out the facts from the drama, in our (the worldwide) current situation (the viral outbreak). That being said there are different rules and threats in play when you are among one of the "high risk" categories (disabled, elderly. diabetic, pregnant, etc.). Whether you heed the warnings or not is … Continue reading The Ripple Effect

The “pursuit”

I was married for the first and only time when I was thirty and my older son was 10. Thirty is definitely not old, but it is old enough for me to have done my share of dating. Dating is a stage of life I do not miss at all. I have told my husband … Continue reading The “pursuit”


I graduated from high school in June of 2001. In August 2001 I was diagnosed with Friedreich's Ataxia, and almost exactly two weeks later I moved into my freshman dorm room on the ninth floor of a residence hall at Temple University in Philidelphia, PA as a social work major. That school year (fall 2001 … Continue reading Regrets